26 August 2014
I woke up at 8 a.m. last Wednesday and immediately started work on my house. I cleaned and cleaned and cleaned. I wanted my house to look nice while I was recovering, mostly because I knew that people would be visiting and bringing over meals and I didn't want them to see how we normally live. And also with the added bonus that if I died on the table, no one could judge my inferior housekeepery. So I scrubbed as hard as I could; I mowed the lawn and weeded and at 2:00 I took my last bubble bath. At 2:45 we dropped Sparrow at a friend's house and headed to the hospital.
I was supposed to be operated on around 5 p.m. At 5:15, I was still hanging out in pre-op, bored out of my mind. Luckily all my cleaning wore me out, so I was able to take a little nap while Hawk did some work on his laptop. At 6 the doctors finally came in to consult with me. The surgery was supposed to take around 45 minutes, with another 1.5 hours spent in recovery before I could go home. Sparrow's first day of school was the following day, so Hawk and I were anxious to get going so that we could pick Sparrow up from my mom's and put him to bed at a reasonable hour.
Hawk and I said adieu and the anesthesiologist wheeled me to the OR. He gave me some anxiety medicine and after a minute asked if I had felt anything yet. "Um, no," I said. So he gave me the rest of the syringe. I still didn't feel it. Sometimes when I go under anesthesia I can feel it kicking in, but this time was one of those times where it just went black.
The next thing I knew was pain. Serious pain. I entered the hospital at a pain level of 5/10 and I woke up from anesthesia at a 9. The anesthesiologist gave me fentanyl before I had woken up all the way, but it didn't help. The recovery room nurse gave me another amp of fentanyl, plus TWO amps of Dilaudid. Then they gave me 2 oral Percocet, but I never got below a 7 on the pain scale.
While this was going on, I learned that the surgery had taken twice as long as it was supposed to and I started freaking out because Sparrow was at my mom's, and it was getting late. Then I learned that the surgery hadn't even happened properly.
Apparently, there was so much scar tissue that the surgeon wasn't able to get through at all. He tried to make a wider incision than normal through the belly button and that didn't work, so then he tried he to make a new incision through the right side and he still couldn't get through. The poor guy tried for an hour and a half to make the surgery work and he couldn't do it. I felt really bad (I still feel bad.) The doctor said that in 28 years, he's never seen anything like this. He said he's never not been able to do a laparoscopy. What can I say? I'm an anomaly.
Luckily, while I was under, Hawk called my mom and was able to let her know what was going on. She brought Sparrow to our house and put him to bed and then just sat around bored for a few hours. We didn't get home from the hospital until almost midnight, so we were really grateful that she was able to do that for us.
It's been 6 days and the pain level is still unreal. Especially for them not being able to do anything! I had to go to the ER on Friday and they gave me 4 syringes of Dilaudid and it still didn't touch it. I don't understand why I hurt this much. I haven't dropped lower than a 7 throughout the entire recovery.
So I have abs of steel. Or titanium. Or there's a baby dragon in there. Or maybe I'm part turtle shell. I don't know.
People keep asking me what's next. I don't know what's next. We've talked with the doctor briefly. He wants me to get some gastrointestinal tests and rule everything out that way. Then, once we've confirmed that it's not my bowel or stomach or anything else, he's thinking he will do another surgery where he opens me up and removes the scar tissue and checks for endometriosis. This one will not be laparoscopic, so the recovery time will be longer. Whiiiiich means that I can't even consider this surgery until the semester ends in December.
Realistically, it's not too bad. I've lived with the same pain every day for 2.5 years. I can handle 4 more months. But I wanted this whole saga to be over. I wanted it solved and I want the pain gone. So the thought of hurting for the next few months is, well, painful. Yes, there is a painkiller I can take to keep me sane through the whole thing. But I just quit that medication and it was hard and I want to be done with it.
So that's the story. I'm a medical anomaly with abs of steel. And I'm not sure where we go from here.
But on the positive side, Sparrow has been doing well in first grade and he's coming home every day with new nonsensical German words to teach us. Seriously, this kid is amazing. I'm excited that he's learning a new language, but German sounds ... very pretend. At least if he's faking it, he's doing it convincingly. Ja, sehr güt.
19 August 2014
Watching Sparrow has broken my heart. He is terrified for me. He is so scared and I don't know how to fix it. I have explained that it will be okay, that the doctor is trying to help me. I tell him that the doctor is going to fix the owie in my tummy, and that once he fixes it I will be able to play with him more and not be so tired and hurting.
I am afraid that I am lying. I am afraid that I will always be broken; that I will always be in pain. I am afraid that the surgery won't help, or that it will help but I will have to have it again in a few years. I am afraid that the doctor will take my ovary out and I will only have one left. I hate this ovary that seems to cause me pain, but I don't want it to be taken out.
Sparrow asked me today why he doesn't have any brothers. My heart stopped for a moment. I explained that my body couldn't have any more babies and that Hawk and I had prayed about it and decided that Sparrow was our family. But then today I talked to Hawk... and both of us want another baby. And I still have ovaries, so...
Sparrow starts first grade (!!!!!) on Thursday. I will be out of commission for his first day of real school. I am terrified for him. He is brilliant, but he is innocent. He is going to a real school, not a developmental school anymore. There will be kids that are mean and kids that teach him bad things. How do I counteract those things? How do I protect his so innocent heart? I look at him and I can't believe how sweet and innocent he is. He doesn't understand normal kid behavior. The other day a kid called him a name and Sparrow retaliated only because he thought the other kid was playing with him. And when the kids exclude him on purpose, he is so confused and sad. I want to protect his innocence, but I don't know how.
I'm confused lately. I'm starting school on 2 September, and I don't know what I want to major in and I don't know what my classes are (I'm registered but the only class I remember is German 101.) Why am I going to school? I may never be able to hold down a real job, with all the health issues I have. My degree is a dream I have always had... but will it be useless once I get it?
Hawk gave me a blessing tonight. He blessed me that if I follow the directions of my doctors and follow the Word of Wisdom, I will have a body that is clean, clear, and full of light.
That is my dream. I want that body. I want a body that is clear and clean and can function. I want to be able to play with Sparrow without getting tired. I want to spend days cleaning, working, playing. Not lying on the couch and trying to sleep so I can escape from the pain for a few hours. I hate who I have become because of this pain. I hate that Sparrow has learned to play by himself because he knows I will say no if he asks me to play with him. I hate that we have completed almost nothing on my Summer Plans list.
I dream of that body - the one that is pain free, strong, and clean. I will do all I can to receive that body. But in the meantime, this pain is ruining me. It is ruining who I am and who I want to become.
I am not afraid, but I am nervous. My heart is aching for so many things.
I just want Sparrow to be okay, and I want Hawk to be okay, and I want me to be okay. I just want to be okay.
I'm prone to wander, Lord; I feel it. Take my heart - O, take and seal it - seal it for Thy courts above.
16 July 2014
I doubt I was the only child who feared growing up, but I sure felt like it. While all of my friends were obsessed with the thought of boyfriends, high school, driving... I was busy playing with my ponies. Each birthday brought me to tears. On my tenth birthday, I was near hysterical at being a "double digit." Birthdays should be fun and happy, but for me they were always a reminder of how I was aging; I was running out of time to be a kid. Soon adulthood would be upon me, and then what?
Here I sit at 27 years old. I am, by all appearances, a real live grown up. My heart breaks for the little girl I used to be, because no matter how hard she fights, no matter how hard she prays for a vampire to bite her so she can stay young forever (yeah, true story), it's not gonna happen. Time marches inevitably on. Sorry, little Krisling. Stop obsessing and enjoy the time you have left.
But let me tell you a little secret. Even though I look like an adult, and sometimes I can even sound like an adult, I am not an adult. Inside, I am still a confused, befuddled 14 year old who just wants to be left alone to read. Most of my days are a battle with myself to make me get out and do something when really I just want to sit at home and hide.
Sparrow helps. He helps a lot. He distracts me and keeps me from thinking about all the scary adult things. I used to have panic attacks in grocery stores, but now when I take him with me, I focus on him and no more panic attacks. Whew.
I remember when I first met him in the hospital. He was 3 days old. The pediatrician came in and started talking about the tests they were doing and lots of medical stuff and I immediately tuned him out. Then I thought "um, I'm a parent now. I should probably be paying attention to this."
Yeah, a lot of my life is like that. I am so lucky to have Hawk in my life. Hawk is a REAL adult. Hawk knows how to listen and how to have an attention span even when things are boring. Usually I let Hawk listen and fill me in on the important stuff later. Sometimes this backfires, but it usually works out. It's a decent enough system.
Because here's another secret: I get too worked up over things I can't control. This week has seen us slammed with a series of tiny injustices. One after another after another. I decided to try and handle it, because Hawk is already so busy with work and keeping us alive. So I started taking care of it on Monday, and by Tuesday I could think of nothing else except getting this fixed. Guess what? The other party has absolutely zero interest in getting this fixed. No matter what I do, I am going to lose this battle. And it makes me fight harder, and it pisses me off, and it's all I can think about. And I can't turn it off, and it goes around and around and I can't make it stop.
This is why I don't get involved in politics. This is why I don't do online debates, why I don't often post about Serious Business on my blog. I can't turn it off. Once I engage and get into a topic, I want to fix everything about it. And when I can't fix it, and fix it quickly, my soul feels crushed.
Right now I feel like my soul is one of these:
11 July 2014
I wasn't sure where we should go. I kind of wanted a train tracks, urban-y vibe. The girl who I talked to didn't have any good ideas for places like that. Me neither. But then she sent me a list of suggestions, and at the top of her list was the Salt Lake City Public Library. Um, yeah, I didn't even read the other suggestions - it was perfect. We are such huge book nerds in this family, and Hawk especially LOVES the City Library. It does have some sweet architecture goin' on. So, that's where we got shot.
I love how they turned out. I will definitely use Fotofly OnTheSpot again, someday. Someday when I can afford it and also my house is done, for reals. Because I really need to get a professional Crazy Cat Lady portrait. It just has to happen.
23 June 2014
From my limited viewpoint, it seems like both sides could have handled everything much better. Kelly's disciplinary council should have been held before she moved out of the state, period. But Kelly should have listened to the counsel of her leaders. It's okay to question and to ask the big questions, but from my point of view, Ordain Women has gotten out of hand.
All I know is, I'm sure glad I'm not Kelly's ecclesiastical leaders. Can you imagine being the one who has to make the decision? I can't. Shudder.
I can only speak for my own experience as a Latter-Day Saint female, but I don't want the priesthood. I just don't. I do believe that men and women are seen as different but equal in the Church. I have never felt marginalized by the doctrine of the Church. Although after I first got married, I did have one bishop who made me feel a little inconsequential, but in that case, I think he was seeing me as a very young person and treating me that way. Which, young I was. I was 20-21. I was young and dumb. He treated Hawk the same way he treated me, so I don't think it had anything to do with gender.
When I was growing up, I never really wanted to be a girl. I was a tomboy to the max. The only thing that I ever thought was unfair about being a girl in the church (well, besides having to wear a dress) was the fact that I wasn't allowed to go on a mission until I turned 21. Since the missionary age has been lowered, I'm willing to bet my 13 year old self wouldn't find anything wrong with being an LDS female. My 27 year old self certainly doesn't.
When I was 19, I underwent a disciplinary council. It was one of the most exhausting, heart-wrenching, and spiritual experiences of my life. I was scared, but I have never felt so loved in all of my life. I didn't know the bishopric holding the council very well, but they treated me with so much respect and love that I came away from the experience a stronger, happier person. I've just really never felt so protected and watched out for. I knew then and I know now that they wanted the best for me. They held the council to get me back on track to where I needed to be, not to browbeat me into obedience or intimidate me with their man-powers.
At my council, I was given a list of 4-5 things to work on. Stuff like "meet with the bishop every month to discuss progress," "study the scriptures on repentance," etc. One of the men involved at the council said to me: "this is not a requirement, but I have a suggestion for you. I'd like you to seek out and read a book on womanhood. The Spirit will help you to find the right book for you. Read it, and I hope it will help you understand more about your gender and what it means to be a woman."
That right there was some of wisest council I have ever been given, ever. At the time I was like "...uh, what?" And it was frustrating to go to Deseret Book and look at their "womanhood books" and not have the sense that I had found what I was looking for. But one day I happened across A Quiet Heart by Patricia Holland. I decided to buy it, and it changed my life. For the first time I had a better idea of what being female meant, and why it was just as good as being a male. It changed my life, that book. I was happy in my own skin, in my own gender, for the first time in 19 years.
So when Kate Kelly says that women are not equal in the eyes of the Church, I disagree. Everything I have seen, everything I have studied, says that women and men are equal but different. Kate Kelly does not speak for me.
It's hard to watch so many people fighting and hurting over this issue. I don't care if people ask questions. But at the same time, I don't think I could ever presume to tell a bunch of people what to believe and it boggles my mind that Ms. Kelly seems to think she is speaking for every woman in the church. Again, she's not speaking for me, that is for sure.
I don't have the answers. I don't know what will happen. I just hope that those who are making the decisions will have the Spirit with them, and whatever decision is reached will be the right one. I also hope that no matter what the decision is, everyone will be able to see the wisdom in it. Ultimately, I hope that we can all remember that we are children of the Most High, no matter what our personal stance is on the issue of women in the church. And I hope that we can treat each other with love, kindness, and respect.
10 June 2014
We had our first Memorial Day where there was someone's grave to visit (my grandfather; Dan Reeder is sorely missed.) His gravestone was placed very recently, so the whole family got together to visit the grave. While we were there, one of the 18-22 year old boys (I'm not sure who, or how old they really were!) started singing "How Great Thou Art." Then we all started singing it. The Reeder family is extremely musically gifted, so it was a beautiful rendition. And a fitting tribute to my grandfather, who was one of the first to sing that hymn in the Tabernacle after it was added to the hymnbook.
|Sparrow investigating a grave.|
|My grandfather's grave. I miss him so much.|
In happier news, Sparrow graduated from kindergarten! He will be in mainstream first grade next year. We call it mainstream - most people just think of it as "normal" school. Sparrow has been in a diagnostic kindergarten which only has children with disabilities. His classroom had nonverbal children, children with Downs Syndrome, children with low-functioning autism, children with high-functioning autism. Sparrow was very likely the highest functioning autistic child in the classroom. Most people do not realize he is autistic, because he can seem 100% normal when you first meet him. But often he has emotional meltdowns and that's where the autism comes in. He functions more on the emotional level of a 3 year old, while he's on the intellectual level of an 8 or 9 year old. It's crazy. But we're excited to have him be mainstreamed, and in a school which is close to our house! The diagnostic kindergarten was about 30 minutes away by car - the school bus took even longer.
|Sparrow-Ninja on a log.|
|Hawk was also a hiking ninja.|
|During the ceremony, being the perfect ring "bear"er.|
|Sparrow adores his Nana with all his tiny heart.|
|Dancing with Nana during the reception.|
|Uncle Peregrine carved his and his wife's first name initials into this tree, but they just so happen to be Peregrine and Sparrow's first initials too. Booyah.|
|This is for you, Peregrine. And for Robin too. |
|I figured I should probably add a picture of me on my blog somewhere. So here it is, a selfie snapped while Hawk drove us to some random location. Bam.|
|And I just posted this one because it amuses me. I hope it amuses you too. And if it does, you're welcome.|
26 April 2014
So for the next few months, I hope to combat that with daily writing. Not necessarily to be posted here, but I need to do SOMETHING with my words. I need to practice wordcraft again, rather than letting my brain spew out whatever it feels like. As I have grown older, my prose has become almost as ADHD as I am. That's just sad to admit. Some of the things I wrote when I was 18-19-20 are amazing (especially when you consider who it is coming from - a relatively privileged, white girlchild.) Now I eschew beauty for wit. I want to use both.
Right now I am done with school until September. I have an Independent Study course to work on, but I have a year in which to complete that. I have an expensive camera I need to figure out how to use well or else sell and recoup my losses. I have much weight to lose. (Sadly, this post's goals have fallen by the wayside.) So those are the goals for the next few months.
- Write daily
- Finish IS class
- Learn Photoshop
- Lose weight
I'm introspective tonight. I'm thinking about how I wanted to go to medical school, but didn't. I'm thinking about how much I regret that, and how furious I still am for the person that made me think I wasn't intelligent enough to become a doctor. Maybe that was not that person's intent, but they consistently made me doubt my career hopes over the course of 8 months until I finally let myself think that maybe I wasn't smart enough. And now I don't think I can go to medical school. I'm too old, I'm WAY too tired. I would kill myself without the sleep I am required by law to get every night. Seriously, it's a law. If I don't get my sleep, I go on a murderous rampage.
I thought about going into nursing, but it's the sleep issue again. I couldn't handle the 12 hour workdays. I am lame.
So then I start thinking about how I should have stuck with writing, and maybe I could have been published if I had ever edited the 3 novels I've written. But I get a novel out and then I'm DONE. I don't want to edit it. I don't want to look at it anymore. I want it to be gone forever. Really, I just need to work on all of me.
Sometimes, I want to quit me.
I am happy with my life where I am. It is so opposite of what I had imagined for myself, which was a cabin in the woods, where I owned a horse and a dog and a small veterinary clinic, and in addition to saving animals, I also wrote books on the side. My life now is best described as "random." I like it. But I need to learn to merge the old, writerly, ambitious Kris into the older, wiser, more ADHD Kris.
So I guess that is my real goal. For the next few months. I think.